Title: The Ethical Implications of Involving Children and Young People in Research Related to their Care, Welfare, and Wellbeing
Subject Classification:  Research, Childhood Studies, Medicine and Medical Ethics  
BIC Classification: GP, JFSP1, MBDC
BISAC Classification: MED078000, SOC047000, EDU037000
Binding: Hardback, eBook
Planned publication date: Jul 2026
ISBN (Hardback): 978-1-83711-550-1
ISBN (eBook): 978-1-83711-551-8

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Description

Partnered and participatory research in health and social care has increased exponentially over the last two decades, and there has been an increased recognition of the need to include children and young people as partners in research. Although their voice has been included through the involvement of parents and carers, or other advocates, it is crucial to hear directly from the children and young people themselves, so their voice impacts the planning, design, development, and implementation of research. Despite the plethora of regulation, legislation, policy and procedure relating to health and social care research, participatory research involving adults or children and young people is not regulated, nor are there any universally agreed standards or ethics applied to the involvement of those who contribute. This is particularly concerning where children and young people take on roles as co-researchers, and project team members. Moreover, there is no statutory requirement to seek ethical approval to involve children and young people as co-researchers/collaborators in the research process. This poses questions and concerns in terms of where ethical oversight of their involvement resides and whether researchers are being mindful of their safety, rights, and wellbeing.

This book adds to the growing literature relating to the inclusion of children and young people in research as partners, co-researchers and contributors to the planning, design, development, and implementation of research, particularly in social care. It provides important guidance on ethical research involving children and young people in a meaningful way. This includes the perspective and lived experience of young people.

Biography

Editor(s):  Dr. Virginia Minogue is a research consultant and adviser, UK and Ireland, and Chair of the Tusla Independent Research Ethics Committee. Dr. Edel Tierney is a national research officer at the Tusla National Research Office, Ireland. Dr. Caroline Roe is a national research officer at the Tusla National Research Office, Ireland.

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