Death, Dying and Bereavement: Measuring what Matters in End-of-Life Care
Title:
Death, Dying and Bereavement
Subtitle: Measuring what Matters in End-of-Life Care
Subject Classification:
Healthcare, Sociology
BIC Classification: MBP, HPQ, JH
BISAC Classification:
Binding:
Hardback, eBook
Publication date:
04 Apr 2026
ISBN (Hardback):
978-1-83711-829-8
ISBN (eBook):
978-1-83711-830-4
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Description
This important book introduces two groundbreaking models developed in Taiwan; the Hospice-Focused Palliative Outcome Index (HFPOI) and the CUP Model (Context–Users–Providers), to reimagine how we assess and deliver ethical, patient-centered care at the end of life.
It provides a comprehensive framework for integrating outcome measurements with the lived experiences of patients, families, and interdisciplinary healthcare teams. Developed by a leading psycho-oncologist and palliative care expert, HFPOI shifts the evaluative paradigm away from burden-heavy nursing tools toward shared responsibility and dignity-focused metrics. It incorporates patient and family voices through validated instruments such as the Good Death Index (LED-GDI), the Bereavement Assessment Scale (HFT-BAS), and the Spiritual Well-Being Scale (PtSpWBS), alongside a unique self-care assessment for healthcare workers.
In parallel, the CUP Model brings grief care into institutional responsibility, highlighting context-sensitive support systems, human-centered user care, and interdisciplinary provider collaboration. It draws on real clinical stories of suffering, resilience, and healing—revealing how patients with advanced cancer or alcohol dependence, their loved ones, and care teams navigate spiritual pain, moral distress, and fractured systems of care.
Rooted in the East Asian context, where family-centered decision-making and hierarchical hospital cultures shape care delivery, this book offers an ethically attuned, culturally grounded alternative to Western biomedical norms. The CUP and HFPOI models were designed not only to improve measurable outcomes but also to transform the meaning of care through relational ethics, grief literacy, and institutional empathy.
With its foundations in clinical ethics, psychology, and healthcare quality, this book will appeal to professionals in palliative care, psycho-oncology, nursing, social work, and spiritual care. It is also intended for policymakers, educators, and scholars seeking scalable, culturally sensitive models of compassionate end-of-life care.
Biography
Author(s): Chun-Kai Fang is a psychiatrist, psycho-oncologist, and palliative care specialist based at MacKay Memorial Hospital in Taipei, Taiwan. He is Professor and Director of the Hospice and Palliative Care Center. He is one of the developers of the CUP model and the principal developer of the HFPOI framework.
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