Title: Death in the NICU
Subject Classification:  Medicine and Medical Ethics, Bioethics, Healthcare  
BIC Classification: MQH, MJL
BISAC Classification: MED029000, MED068000, FAM014000
Binding: Hardback, eBook
Planned publication date: Nov 2026
ISBN (Hardback): 978-1-80866-165-5
ISBN (eBook): 978-1-80866-166-2

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Description

The Neonatal Intensive Care Unit (NICU) teaches us about resilience and about limits. It teaches us that technology is powerful but not sovereign. Most of all, it teaches us that compassion is not an accessory to medicine, but its foundation. Life and death stand side by side there. Our task is to meet with skill, honesty, and humanity.

What is needed, and what this book attempts to provide, is a serious examination of neonatal death as a clinical, ethical, and human experience, not as the failure state of the system but as a dimension of the work that deserves the same rigor we bring to ventilator management or nutrition protocols. The infants who die in our NICUs deserve that, as do the families who survive them and the clinicians who care for them, and bear the weight of those losses.

The book addresses the specific contexts in which neonatal death occurs, the practices and conversations surrounding it, and the ways in which individual clinicians and institutions can approach this dimension of the work with greater competence and humanity. But the starting point is this: to care well for dying infants and their families, you must first be willing to look squarely at the fact that dying happens here, that it always has, and that the extraordinary power of modern neonatal medicine does not change that fundamental truth. It complicates it. That complication is what the author, armed with almost fifty years of experience in the NICU, examines.

An indispensable contribution to the fields of medical ethics, pediatrics, and healthcare policy.

Biography

Author(s):  Thomas Hegyi is Director, Neonatal-Perinatal Medicine Fellowship Program and Professor Emeritus, Department of Pediatrics, Robert Wood Johnson Medical School, Rutgers, The State University of New Jersey, USA; and Director of the SIDS Center of New Jersey, at Rutgers University.

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